New and Featured

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Amy Abernethy, MDIOM Report

ActivEpi Web, an electronic textbook for teaching epidemiology, available free on-line

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Dr. Amy Abernethy, Professor of Medicine at Duke University and Director, Duke Cancer Care Research Program: Can Patient Data Have a Second Life?The Institute of Medicine: Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk.

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Dr. Abernethy, a specialist in oncology and palliative care, describes her experiences in clinical trials and the desire she sees in patients to have their data used in a way which is meaningful, to be treated as "a treasure". She advocates for the consultation of trial participants to determine how they see their information contributing to medicine, as well as searching for ways to re-purpose data from discontinued trials, rather than casting it aside.

Dr. Abernethy spoke on the same topic in 2013 at ScienceOnline, in a lecture available here.

The Institute of Medicine recently released its report, Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk. This publication represents a significant endorsement of the ideas central to patient-centered and evidence-based medicine! Available online: Report Brief (PDF); Key Figures (PDF); Report webpage (link). 

For further reading, you might enjoy this opinion piece written for Forbes, Why Transparency And Data Sharing In Clinical Trials Matterswhich discusses the report, its implications, and even references Cochrane!

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Goldacre on NewsNight

Last Week Tonight with John Oliver: Marketing to Doctors (HBO).

Benjamin Goldacre on BBC Newsnight: Democracy needs evidence

In this clip, the late-night HBO anchor illuminates the sheer scale of pharmaceutical companies' spending on advertisements to doctors and patients alike; a number which dwarfs even their R&D budgets.

Dr. Ben Goldacre, noted for his vociferous criticism of the pharmaceutical industry, contends in this BBC clip that "bad evidence" is used in politics, as well.