|Date posted||Requesting Organization||Type of Involvement||Details||Resources|
|American Academy of Sleep Medicine (AASM) (Sarah Hashmi firstname.lastname@example.org, Direct: 630-737-9369 I Main Phone: 630-737-9700)||Guideline project on “ Indications for Polysomnography and HSAT (non-OSA)”. ||AASM is seeking Patients with suspected sleep-related breathing disorders (excluding obstructive sleep apnea), sleep-related movement disorders, central disorders of hypersomnolence, parasomnias, and for monitoring of patients undergoing treatment for obstructive sleep apnea. Interested parties should contact Kolade Fapohunda (email@example.com) or Reva Datar (firstname.lastname@example.org) as soon as possible.|
Editorial Office for PCORI Peer Review (at OHSU)(Ms. Kira Lesley, email@example.com, (503) 560-4150)
|Consumer representatives to serve as peer reviewers for PCORI studies|
PCORI is in the process of reaching out to community organizations as part of our patient reviewer
The American Academy of Family Physician(Melanie Bird, MBird@aafp.org, (913) 906-6000)
Diabetic Neuropathy Rapid guideline
The American Academy of Family Physicians (AAFP) is seeking a patient representative to serve on a rapid guideline process for diabetic neuropathy. Consumer voice is highly valuable in the final stages of development and review of this guideline. The deadline for nomination is March 15, 2017. Interested parties should contact Kolade Fapohunda (firstname.lastname@example.org) or Reva Datar (email@example.com) as soon as possible.
American Academy of Sleep Medicine (AASM) (Christopher Harrod), Main Phone: 630-737-9700)
Guideline development project on patients with OSA
(AASM) is seeking consumers to participate in a priority initiative to increase patient engagement in clinical practice guideline development concerning obstructive sleep apnea (OSA). CUE members or members of their organization who have undergone surgical treatment for obstructive sleep apnea (OSA) are the primary demographics. However, patient representatives who declined surgery for OSA in favor of alternative treatments are also considered. The deadline for this nomination is April 15, 2017. Interested parties should contact Kolade Fapohunda (firstname.lastname@example.org) or Reva Datar (email@example.com) as soon as possible
American Academy of Sleep Medicine (AASM) (Vanessa Gonzalez), Main Phone: 630-737-9700)
Guideline development for Narcolepsy nad Hypersomnia
The American Academy of Sleep Medicine (AASM) is seeking consumers and/or caregivers of pediatric patients with hypersomnia, idiopathic hypersomnia, Kleine‐Levin syndrome, or narcolepsy interested in participating in a clinical practice guideline. As a stakeholder, the volunteer will be contacted at different points during the course of the project for the following:
1. Help in developing patient‐centered research questions by completing a 15‐20 minute survey on symptoms and side effects at the start of the project.
2. Help in providing feedback on patient values and preferences for several treatments, half‐way through the project.
3. Help in providing feedback on the completed guideline.
Full list: CUE's past partnerships, 2007-present
Please send all applications for involvement to Reva Datar, CUE Coordinator: firstname.lastname@example.org