Presentations from the 2012 CUE Annual Membership Meeting, June 8, 2012

Presentations from the 2011 CUE Annual Membership Meeting, August 12, 2011, Washington DC

Presentations from Advocacy in the Era of Evidence - An International Summit for Consumer Advocates, October 17, 2010, Keystone, Colorado

Presentations from the 2010 CUE Annual Membership Meeting, April 15, 2010, Washington DC

Engagement:  Do People Engage to Get the Care They Need? by Jessie Gruman

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  Keynote: Consumer engagement – Do patients engage with the healthcare system to get the care they need?

Jessie Gruman, President, Center for Advancing Health

• Kay Dickersin

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  When is RCT data sufficient to assess effectiveness and harm and when is more information needed?

Kay Dickersin, Director, US Cochrane Center

• Julia Kreis

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  Current practice of consumer involvement in systematic reviews – opportunities and challenges

Julia Kreis, Harkness/Bosch Fellow in Health Care Policy and Practice

• Who is a consumer, and who gets to decide?
        Presenters: Barbara Warren, CUE representative for National Coalition for LGBT Health; Director, Hunter College Institute for LGBT Social Science and Public Policy
        Tom Hill, Senior Associate, Altarum Institute; Director of Programs, Faces and Voices of Recovery (effective May 2010)
• Be a peer reviewer: Learn to do a critical appraisal of a Cochrane systematic review
        Presenter: Maryann Napoli, CUE representative and Associate Director, Center for Medical Consumers
• Living in a world of insufficient evidence or evidence that doesn’t appear applicable to my constituency
        Presenter: Rachael Fleurence, Senior Research Scientist, Center forHealth Economics and Policy, United BioSource Corporation

Annual Meeting of UK and Ireland-based Contributors to The Cochrane Collaboration

The UK Cochrane Centre broadcasted the plenary sessions from the Annual Meeting of UK and Ireland-based Contributors to The Cochrane Collaboration live on the internet, March 2 - 3, 2010. Click here view the Powerpoint slide presentations.

Presentations from the Stakeholder Summit on Using Quality Systematic Reviews to Inform Evidence-based Guidelines (June 4 -5, 2009)

What is the current practice in using quality systematic reviews to inform evidence-based guidelines? Diverse groups producing systematic reviews and developing clinical guidelines will come together to learn from one another and to stimulate thinking about our work in new ways. They will share successes, pitfalls, current challenges and future opportunities for producing better evidence-based guidelines. Approaches to grading evidence, the critical importance of developing guidelines that are actionable, and the benefits of systematic reviewer/guideline developer collaborations will be strong themes. The question of what ensures a trusted guideline will be addressed from a consumer advocacy, government agency and international perspective.

June 4, 2009

Standards for systematic reviews: Part 1 - Internal needs and perspectives from the guidelines producers

• Chair: Steve Phurrough - Agency for Healthcare Research and Quality

• Cystic Fibrosis Foundation guidelines: Starting from scratch - Karen Robinson - Johns Hopkins School of Medicine

• From systematic review to clinical practice guideline: The Kaiser Permanente perspective - Marguerite Koster - Kaiser Permanente

• Systematic reviews ? guidelines: Translation needs and challenges - Martha Faraday - American Urological Association (Consultant)

Standards for systematic reviews: Part 2 - Meeting external standards

• Chair: Cheryl Dennison - Johns Hopkins University School of Nursing

• Performance measures related to guidelines -  Mark Antman - American Medical Association

• Case study: Screening new methadone patients for cardiac risk: When are practice recommendations ready for prime time?  Marc Gourevitch - New York University School of Medicine

• The Institute of Medicine’s report, Conflict of Interest in Medical Research, Education, and Practice: Adviatkce on conflict of interest to guidelines producers. Robert Krughoff - Consumer CHECK-BOOK/Center for the Study of Services

June 5, 2009  
    
Plenary - Thorny problems for guidelines developers

• Chair: Milo Puhan - Johns Hopkins Bloomberg School of Public Health

• Is there a benefit to standardizing methods for grading the evidence and making recommendations -- If so, is GRADE "the one"? - Yngve Falck-Ytter - Case Western Reserve University School of Medicine

• Making guidelines actionable: How to identify and overcome obstacles - Richard Rosenfeld - American Academy of Otolaryngology - Head and Neck Surgery

Panel: Collaborations between systematic reviewers and guideline developers

• Chair: Susan Norris - Oregon Health and Science University

• Evolution of the National Kidney Foundation - Tufts Evidence Review Team collaboration in developing kidney disease guidelines - Ethan Balk - Tufts Medical Center and Garabed Eknoyan - Baylor College of Medicine

Diagnosis and treatment of low back pain: A joint clinical practice guideline from the American College of Physicians and the American Pain Society - Roger Chou - Oregon Health and Science University and Amir Qaseem - American College of Physicians.

Panel: Ensuring a better interface between systematic reviews and guidelines

• Chair: Roger Herdman - Institute of Medicine

• What have we learned about the quality of the underlying evidence from the National Guideline Clearinghouse - Vivian Coates - ECRI Institute and Mary Nix - Agency for Healthcare Research and Quality

• Transparency of guidelines --- What do we mean and how do we get there? - Jeffrey Harris - Kaiser Federation Care Management Institute

• The American Urological Association guidelines: How we identified a workable process - Heddy Hubbard - American Urological Association

Panel: Ensuring the guideline is a trusted source

• Chair: Kay Dickersin - US Cochrane Center

• What is a meaningful consumer voice? - Carol Matyka - National Breast Cancer Coalition

• US government approaches to guidelines: Experience of the US Preventive Services Task Force and QUERI - David Atkins - United States Department of Veterans Affairs

• G-I-N: An international initiative to promote systematic development of clinical practice guidelines - Jako Burgers - Harvard School of Public Health and Dutch Institute for Healthcare Improvement CBO

Workshops - Podcasts are not available for workshops

• GRADE Profiler: How to make it work for you - Yngve Falck-Ytter - Case Western Reserve University School of Medicine and Nancy Santesso - McMaster University
• Options for formal consensus processes: The steps to success - Catherine MacLean - WellPoint, Inc.
• Getting physicians on-board with guideline development - Henry Jampel - Johns Hopkins School of Medicine
• Incorporating systematic reviews into practice guidelines - Karen Robinson - Johns Hopkins School of Medicine and Roberta Scherer - Johns Hopkins Bloomberg School of Public Health

Presentations from the US Cochrane Center Conference Priority Setting for Systematic Reviews (July 10-11, 2008)

How do we decide which systematic review to do? Is there an ideal system for prioritizing which systematic reviews get done, or are there many ways to make the decision? Policy makers, health care providers, consumers and payers will come together to share current practice, innovative approaches, and untested models to set priorities. Conference participants will explore new and existing priority setting models through plenary sessions, case studies, debates, workshops and discussions. Models, criteria, standards and methods will be presented by a wide variety of individuals and agencies involved in producing systematic reviews.

Agenda

July 10, 2008        
The Institute of Medicine's (IOM) rationale and principles for prioritizing systematic reviews

• Chair: Kay Dickersin, Director, US Cochrane Center
• Speaker: Hal Sox - Editor, Annals of Internal Medicine

• Discussant: Prioritizing Syntheses - Sharon Straus, University of Calgary, Canada

Methods to Prioritize systematic Reviews: Case Studies I

• Chair: Steve Goodman, Johns Hopkins University Biostatistics

• AHRQ’s Effective Health Care Program - Evelyn Whitlock, Kaiser Permanente, Oregon

• The UK’s National Health Service R&D and Department of Health Programmes - Martin Burton, Oxford Radcliffe Hospitals NHS Trust

• The Cochrane Collaboration - Lorne Becker Co-Chair, Cochrane Collaboration Steering Group

• Canada’s Approach: Canadian Institutes of Health Research - Ian Graham Canadian Institutes of Health Research

July 11, 2008        
Plenary debate: Models of priority setting for systematic reviews of clinical effectiveness

• Chair: Lisa Bero, University of California San Francisco

• Let 1000 flowers bloom: Support for the current "system" - Doug McCrory - Duke University Medical School

• Both prioritization and review production should be centralized - Gail Wilensky - Project Hope

• How can we leverage the best of these two models? A hybrid model of centralized priority setting - Sally Morton - Research Triangle Institute

Panel: Knotty problems related to review prioritization  

•        Chair: Nananda Col - Maine Medical Center

• Meaningful engagement of decision makers in priority-setting- Sean Tunis - Center for Medical Technology Policy

• Considering adverse effects in priioritising reviews- Andrew Herxheimer - Cochrane Collaboration Adverse Effects Methods Group

• A mid flight correction: setting priorities - David Moher, University of Ottawa  

• Meaningful engagement of decision makers in priority-setting- Sean Tunis, Center for Medical Technology Policy

• Incorporating systematic reviews into other systematic reviews: Can we save time and be valid? - Evelyn Whitlock, Kaiser Permanente, Oregon

Methods to Prioritize systematic Reviews: Case Studies II

• Chair: Luis Gabriel Cuervo - Pan American Health Organization

• Drug Effectiveness Review Project - Alison Little, Oregon Health & Science University

• The James Lind Alliance and I - Lester Firkins, James Lind Alliance

• Centers for Disease Control & Prevention Community Guide - Shawna Mercer, Centers for Disease Control and Prevention

Open Discussion: Working together or working apart: Cross-group cooperation in priority setting    

• Chair: Eric Bass - Johns Hopkins University Department of General Internal Medicine

• Jean Slutsky, Agency for Healthcare Research and Quality

• Lisa Bero, University of California San Francisco